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Friday, December 12, 2014

Mark's Update from FL - Waiting for a Heart Transplant

Florida

I’ve been waiting to update with the hope that I could deliver some good news about my status with Tampa General.  It’s going to take a little longer to get that update.  I’ve been in Florida since November 16.  I had my first appointment on the 17th (thanks to Jami’s Uncle Ralph for being my Florida Family and spending the whole day at TGH).  And the appointments keep coming.  I have to admit a little frustration in the inability of the system to get me to the place that I can be considered for transplant with TGH more quickly.  I continue to be positive about my decision.  I’m more sure now that my chances are better to be transplanted faster here than in Minnesota, but not without a cost.  I really miss my family.  Thank God for FaceTime and a much needed family visit over Christmas break!  The way the days fall it looks like I won’t be able to presented to the review board until after New Year’s .  Pray there are no roadblocks.  Once accepted I’ll shift my time on the list to TGH.  So thankful I’m not starting over!
What keeps me positive and hopeful:   

All my friends and family that have reached out to me just to check in or arrange a visit. Thanks Tim and Katie for making me a side trip on your visits to the sunshine state. Thanks Tom for consistently checking in on me and being ready to jump on a plane if I need a visit. Thanks Father Rolf for your check-ins and prayers!  Thanks Mom and Dad for your faithfulness and encouragement.  Thanks to my girls for making me a part of everyday.  
Rico has been a blessing.  Don’t know what I’d do without my little buddy for companionship.
Florida!  I could be waiting in Cleveland or worse… how much worse does it get than Cleveland?  I see the sun almost everyday.  I enjoy walks by the water.  
My Health!  I feel great.  The VAD continues to do the job.  I know I feel so much better than last year at this time.  I was on borrowed time.  
…And if I ever need live entertainment I can drop by the Wal-mart late in the evening for a snapshot of life that can only be described as surreal.  
I covet your prayers.  I know that’s a daily habit for many of you, I pray for you too!  Keep in touch!
Mark

2 comments:

  1. Hi Mark,
    I just want you to know that I think about you often and keep you in my prayers. Hang in there and keep the positive outlook that you have.
    Love,
    Sharon Lynn

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  2. Mark, Just prayed for you yesterday. I am thankful you feel better at least compared to last year and am excited to see how God is going to write the next chapter of your story. We will be an hour north of Tampa at Kathleen's parents over spring break (March 14-20) and I want to come visit you.....especially now that I know it might mean me making the blog.

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